After the diagnosis, there was a sense of relief in at least we knew WHY he didn't interact with other children at birthday parties, the park, and play dates. I finally knew why he picked up leaves in the school courtyard while waiting for preschool to start instead of playing tag with the other boys and girls.And while my heart was initially heartbroken over his lack of ability to coordinate play with others, at least we had an answer.
I have come to value how God has created Luke; diagnosis and all.Instead of seeing his time by himself, as I would if I were in his shoes, as loneliness, I now admire his freedom. He does not care what other's think. He does not cave into pressure from peers, and he is more sure of who he is and what he likes more than any other nine year old that I've ever known.
But there are times when insecurity about his atypical behavior gets the best of me. There are times when I try to change him to make him more like his typical peers.
However, God always is there to remind me that Luke does not need to be changed. Luke is Luke. He was made by a God who is bigger than Asperger's Syndrome.
We joined close friends of ours at the beach last weekend. While all the other kids immediately conjured up ideas of grand sand castles and set to work, Luke struggled.
He wanted to go home.
He didn't want to get wet.
He refused to wear his swim trunks.
He declared he was "bored" multiple times to the point that I began to threaten consequences.
But in typical Luke form, he just needed to adjust.I should know that by now. And once he did, he spent his afternoon on a quest for sand dollars.
I watched him investigate the grains of sand as he looked for that perfect prize while the salt water washed over his feet and my heart swelled with contentment.
He is exactly the Luke God made him to be.
I could not be more grateful. I would not want him to be any other way than fearfully and wonderfully made by the One who loves Luke more than I can comprehend.
I praise you because I am fearfully and wonderful made; your works are wonderful, I know that full well.







Absolutely beautiful! He is teaching you more than you realize isn't he?
ReplyDeleteMore than you know! I am very humbled by being his mom.
DeletePraise the Lord for Luke! Thank you for sharing your story, Psalm 139 is my FAVORITE.
ReplyDeleteIt is one of very favorites, too. Thank you for reading!
DeleteAbsolutely my view on both my AS boys. I love their amazing minds and their unique perspectives. Though it is hard to watch them struggle in a world that's not as inclusive of nuero differences as we'd like, I love how you are rejoicing in Luke's unique giftings. Lovely post, friend.
ReplyDeleteBetsi, you get it. I know you do. It has been such a process for me. I have been slow to adjust, but every second of the learning has changed my heart deeply.
Deletethank you for sharing this! my son was recently diagnosed with pdd-nos. i trust God in His faithfulness and His design. but still feel very alone in figuring it all out Biblically.
ReplyDeleteJulia, I still feel very alone often. Even though I have grown and changed my perspective on my son's diagnosis, I am still challenged daily. If you ever need to vent or run questions by someone, feel free to email me:katie@spenceraudio.com.
DeleteIt is the most peace-giving truth: that we are uniquely created and made in his sovereignty. Thank you!
ReplyDeletePraise God that He is always sovereign!
DeleteWe are starting through a very difficult time with my oldest-not diagnosed, but he is just a shy, worried introvert. He hates change, and we're about to throw a lot his way. Thank you for this reminder today. My Eli is exactly the Eli God made him to be. I need to remember that.
ReplyDeleteHi Sara,
DeleteYes, our kiddos are so unique, aren't they? You sound like such a sensitive mom who knows his needs well. Isn't it even better that we serve a God who knows all of our needs much greater?! I'm praying for your Eli and for a smooth transition with the upcoming changes in his life.
Hugs to you!
Katie
oh, i just love this.
ReplyDeleteGod knew exactly how we would be before we were even born.
He has everything under control all.the.time.
what a glorious blessing and comfort!
All the time...so true! And yet, I forget that so often and try to labor life's troubles on my own. Great reminder!
DeleteHow amazing! We can all learn from this...learn to understand who our children are and appreciate and respect them for that.
ReplyDeleteHe sounds amazing to me.
Thank you, Susan. I love that you know him since we've been blogging friends for awhile. I keep learning from him all the time.
DeleteYou hit the nail on the head, Katie. I worry about "loneliness" too, for my little guy. I wonder if he ever feels lonely or if I just feel lonely for him. At any rate, Nolan is made just as God intended him to be...as are all of us.
ReplyDeleteI have to try hard to stop seeing things from my perspective. I can't weigh Luke's happiness through my own life experiences. It is a struggle, but I'm trying. : ) I know you understand that. XOXO
Deleteoh katie, you got me all teary eyed! you are such a wonderful mother. just beautiful. i bet he is one wonderful little guy :)
ReplyDeleteHe is a wonderful guy. I am so thankful for him and for you! xoxo
ReplyDelete